Saturday, September 23, 2017


Here we go again. PLEASE add your voice to mine and help us defeat this mockery of a solution to our national healthcare problems. Follow this link to find out how you can help.

Dear Senator,

I wrote to you earlier this summer, asking you to oppose the American Health Care Act. I am writing again, asking you to vote "NO" on the Graham-Cassidy bill currently being considered by the Senate.

I am the mother of two boys, the youngest of whom has cystic fibrosis. CF is a progressive, genetic disease that affects primarily the digestive and respiratory systems. Currently, life expectancy is approximately forty years. Recent advances in the treatment of cystic fibrosis, however, have resulted in significant improvements in the health and longevity of those living with CF. My son Caleb is directly benefiting from one of these "miracle drugs", Kalydeco.

Keeping Caleb healthy is very expensive. The retail cost of Kalydeco alone is over $300,000 per year and that is only one medication he takes. In the two years Caleb has been on Kalydeco, we have seen a significant improvement in his health. He has missed fewer days of school and has not been in the hospital. My husband and I have been able to work without missing significant amounts of time on the job.

Without access to Kalydeco and other maintenance CF medications, our lives would look very different. Without quality and affordable health insurance, we would not be able to afford Kalydeco. Annual caps and lifetime limits will make it impossible for us to maintain preventative care for Caleb leading to increased illness, hospitalizations, lost time from school and work, and eventual early death.

It is not an exaggeration to say that a "yes" vote for this bill is a death sentence for my son.

Senator, I have been a political conservative all my adult life. Now I find myself forced to support liberal agenda I do not agree with in an attempt to preserve my son's right to LIFE, liberty, and the pursuit of happiness.

I beg you to find another way, a bi-partisan way, to fix what is not working in our current healthcare system. I agree that reform is needed. I am asking you to think of my son and thousands like him as you make decisions in the coming days and weeks. His life has just begun and as his mom, I want nothing more than to see him reach his full potential.

You hold Caleb's life in your hands and I am counting on you to protect him.


Caleb's Mom

1 comment:

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