In May we had our most spectacular Great Strides event yet. The Atlanta Great Strides raised more than $2 million! I am still in awe of the $25,000+ our team raised and the overwhelming number of friends and family who turned out to support us. Wow! Great Strides is my favorite day of the year and I am without the words to express my gratitude to all of our supporters.
We had, hands down, the best summer EVER. In June we traveled to St. Augustine Beach for a week of family vacation. We had an awesome time! It was Caleb's first stay in a hotel and I'm not sure what impressed him more - the ocean view or the hotel amenities! My favorite moment was watching the sun rise on the beach. The glory of God's creation at the dawn of a new day never ceases to take my breath away.
Caleb went to the emergency room twice this summer - once for croup (he couldn't breathe) and once for stitches (he needed eleven). I swear, that boy is determined to turn all my hairs white. The good news? He hasn't been on antibiotics for respiratory congestion since early February. That's SIX months, my friends. He has never gone that long in his life. The full dose of Kalydeco appears to be having a significant, positive impact on his overall health. Here's hoping the streak continues!!
Just this past weekend Joshua was baptized at our church, showing the world his intent to follow Jesus all the days of his life. I am so proud of him. If he could go directly to the mission field today I think he would. His heart for people and his passion for justice are enviable. I can't wait to see what God has in store for him!
Still recovering from Sunday's extreme "high" we find ourselves in something of a valley today. After visiting with our pediatrician this morning, we are now exploring a probable diagnosis of neurofibromatosis (type 1) for Joshua. Although his symptoms are very mild, he does meet at least two of the diagnostic criteria, all that is necessary for an official diagnosis. We have been referred to the NF clinic here in Atlanta for further testing; the earliest we can get an appointment is April 2017. NF is neither life-threatening nor life-shortening, but a diagnosis will allow for close following and early intervention when (if) symptoms arise. Puberty can also impact the expression of symptoms. As we navigate this next year with him, I covet your prayers.
We know that all things work together for good, for those who love the Lord and are called to his purpose. We also know that we can rejoice when trials come our way because the Father is already in tomorrow and he knows how this story ends. He has carried us through the valley before; we have faith that he will do it again.
Thank you for your continued prayers, love, and support. We are truly grateful.
Click here for more information about neurofibromatosis.